My New Reality

Several years ago, a doctor dismissed my request for an autism assessment, asking why I’d even want a “label.” But after a career spent supporting autistic individuals, a simple joke about my “Sheldon chair” forced me to be honest with myself. I realised I couldn’t advocate for others while hiding from my own truth. Two years on a waiting list later, it was official: I am Autistic.
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When Worlds Collide

While I was still navigating how to come out as autistic, Stage 3 Breast Cancer happened. My neurodivergence and my diagnosis collided immediately. During my first chemo session, the sensory trauma of cannulas triggered a full meltdown. It was a turning point that led to me getting a chest port.

I spent the next year fighting through treatment, side effects, and what the chemo ward calls “the crash.” But for me, the crash was deeper.

The Aftermath: SAI and AuDHD

Recovery didn’t mean returning to my old life. Treatment caused Secondary Adrenal Insufficiency (SAI). My body no longer produces cortisol, the hormone required to handle stress. Now, an infection or even a stressful traffic jam isn’t just an inconvenience, it can lead to a life-threatening medical emergency.

I have also recognised clear ADHD traits, leading me to self-identify as AuDHD. Managing the sensory demands of autism alongside the compulsive behaviors and weight gain from life-saving steroids is my new daily reality.

​Where I Am Now

I’m learning to navigate a body that works differently than it use to.​

The Struggle: Managing steroid-dependency and perimenopause without the option of HRT.

​The Goal: Identifying triggers before they lead to an adrenal crisis or autistic burnout.

The Mission: Finding the right balance to reclaim my autonomy.